Family Journey

Posts Tagged ‘Celiac


The house smells amazing OR is it because I am starving and do not want another cold breakfast.

This has been 1 week of trying to eat Gluten Free and I will tell you have had a few successes, but I think I have had lots of fails.

So this morning, I decided to try my hand and cook. I have made 2 dishes so far and the one which is cooking right now can be cut up and frozen so I can have it at work next week.

Breakfast

Rice mixed with Granny Smith apples which were stewed with apple juice and brown sugar. B refused to touch it, so she had parts of lunch which is in the oven cooking.

Brunch and Next Week Breakfasts:

Maple Bacon, Eggs and Grit casserole.

Cooked bacon crumbled and mixed into a mixture of grits and eggs. Cooked into a bread like casserole, served hot and topped with shredded cheese.

It I very good, very excited. There is enough that I can take it to work every day next week for breakfast. I got really tired of yogurt and pineapple for breakfast every day.

Lunch:

I hope to see if I can talk Hubby into a late lunch at the Mellow Mushroom. I spoke to them yesterday and they told me to come in and sample their Gluten Free Pizza.

Tonight:

I’m going to try a hand at family favorite, tweaked to be Gluten Free.

Scallops with Bacon, Onion and Red Pepper on top of Polenta with a side of lightly breaded and fried Zucchini:  I hope the modifications work.


After reading this, found an alternative to Soy Sauce.

Dinner tonight: Baked Pork Chops, Steam Rice and Green Beans: Chops & Rice spiced with Worcestershire.

http://www.leaperrins.com/

Lea & Perrins state most of thier projects are:

“Lea & Perrins® marinades and Worcestershire sauces are cholesterol free, fat free, preservative free, gluten free and has 80% less sodium than soy sauce.”

Still reviewing the site and will complete with a trip to the store this weekend.

When I was diagnosed with Celiac disease, there were a ton of things that I cut out of my diet that I later re-introduced. I’ve discovered that even if it isn’t marked gluten-free, it might still be gluten-free. It’s just that there are strict guidelines if a product is going to be marked gluten-free that most companies don’t want to follow. Always be careful when eating food not marked gluten-free. Stick to small portions until you know whether … Read More

via Gluten For Punishment


Well it is official. 

My GI doctor called and confirmed,  his diagnosis of Celiac’s Disease. He went from Possible, Probably to Confirmed in the last 10 days. We had a long conversation and discussed all my options.  It appears this is going to take awhile for my system to be healed, so there is “No Cheat” days, there is no sliding, and this is a life change, not a diet.

I will be going to see a nutritionist shortly; there are so many things to avoid. I guess it would be better to have a list of things I can eat, instead of what I cannot.

The Doctor also wants me to join the local support group. Will be heading to meet them on 2/12.

Now to the Doctor visit which has me a little freaked out, but only when I’m not at home and around my kids. All 3 of the munchkins go into tomorrow to physicals and I have asked both doctors to test for Celiac’s.

My youngest (9 year old girl), who shows the most symptoms is excited to find out if she is “allergic” to flour. My oldest (12 year old boy) said “Whatever, as long as I get to eat bacon.”

My Middle child (10 year old girl) is completely freaked out, because she may be allergic to “Thin Mints”!

I have told them the testing is mainly for me to make sure they are healthy. Yearly check-ups are necessary for to make sure there is nothing wrong with them, and if there is, the doctor will let us know what to do to make sure they get and stay healthy.

So keep your fingers crossed, if the youngest has a positive test, I don’t know what she will eat. She is extremely picky, she will probably only eat: apples, GF oatmeal and roasted skinless chicken legs.

 

 


I headed to the office on the first Day after diagnosis. Generally, I’m running out the door with an Atkins bar and cup of coffee or a diet Dr. Pepper.

I promised myself: I will be prepared. I will bring my breakfast and lunch!

After dinner on Sunday night, I prep for the next day, have menu and everything is ready to go.  Girls were in the bed early, but son got home late from his ski trip.

Little did I know, thanks to my best friends, I got sucked into a marathon!  I don’t know if it was actual insomnia, or a “Thank you Jennifer, Kathy and “Prairie *itch”.  I liked Little House on the Prairie when I was little, now I LOVE IT, thanks to Jennifer and Kathy referring the Biography by Nellie. I was up until 5am watching hour after hour of sappy, cry and everything ends up ok episodes from 1980-1981.

The girls were up 5:30, but hubby let me get another hour of sleep and he took the girls to early AM reading class at their school and I got to stay home and get the boy up and ready for school.

At 7:15, I’m running out the door loaded down with: laptop, blackberry, reader, purse and huge plastic bag of food. I get half way down the steps and realized; I have not had any meds today.  Tossed everything into the front seat, started the car, ran back inside, grabbed all my meds and a drink.  Back in the car, I head to the 27 mile commute to my office.

Whew that was easy, but I knew my first temptation was coming up. Pavlovs law, at mile marker 60, my stomach starts to growl as I pass Burger King, I stand firm, but by exit 56, I take the exit and my car tries to turn into Dunkin Donut, but once again. I stand firm.

Pull into to the office and drag all the items in and fix breakfast, to eat as I go over my emails from missing Thursday and Friday because of the  party with the doctors and surgury center.

YUMMY: Ice cold Lowfat Vanilla yogurt, frozen pineapple and sprinkled with Roasted Soy Nuts.

Today is going to be a great, I got it under control.

30 minutes after breakfast, I get a call reminding me I had a lunch meeting which was scheduled while out on Friday. “See you at the Siam Café”, was the cheerful person on the phone.

WHAT THE HECK AM I GONNA EAT IN A SMALL THAI RESTURANT! 

This is my favorite place to eat. I love the eggrolls, curry, soy noodles, and fried bananas. I have to go for business. I can’t mess up after 2 days.

11:30 came a lot quicker than I thought.  My lunch date was already there, as my team and I arrive. BUT I found things to eat. I have eaten at this place at least once a week or more for the last 3 years.  I asked a few questions and I got food! Not what I would have loved to eat, but I got to eat without trouble.

Lunch: Steam rice, just right to eat with chop sticks and fresh spring rolls. Did not have the peanut sauce, sweet and sour sauce or the soy, but it was still good.  Spring roll: inside: cabbage, carrots, basil, soy bean, rice noodles and shrimp, wrapped in tapioca wrap.

Then back to the office to more paperwork and another meeting.

My brain must have been completely in a cloud. I promised my girls I would volunteer at their summer camp and tonight is the meeting to set the group, see which age group the director will place me. This is the theme is “Forever Green”. Meeting starts at 6:30, will not be able to make it home, before the meeting, so Micky D’s for snack!

Snack: Diced apples and McDonald fries.

I’m listed as a Unit Assistant Leader, I get to help and not do a lot of planning.  They did not give me either of my girls’ group, so I get to be mom to them and not a leader. At the moment, I am the leader for of their Girl Scout Troops.

Dinner: Hubby roasted a naked chicken and I make Chicken Grits w/flax, served with fruit.

I made it through a work day. Today has made me feel good. I am proud of  myself on being able to adapt and I was able to be Gluten Free outside my home. 

Tomorrow, will be better because:

 1 “Little House on the Prairie” is not on

2: I’m dozing as I write this

3: I found I have the support and understanding of my team

4: I have made it through Day 1, Day 2 will be better


Ran across this blog and thought I would share with everyone. Please enjoy.

http://celiacandwhat.wordpress.com/2010/11/28/celiac-and-loved-ones/.

Tags:

Armed with shopping list and an overwhelming sense of I can do it. I found myself wandering around the store lost as a traveler in a foreign country.

Objective:

In and out in 15 minutes, with food I can eat. Shopping list has 45 items on it, and all from a Gluten Free cookbook and items I can either pre-cook or take to work to eat.

Easy! Generally shopping takes 15-20 minute speed shopping.

Actual Results!

I knew I was in trouble the moment I walked in and head started swimming, the smell of fresh baked bread covered the entire store.

Veggies went great, the only problems, lots of fresh veggies.

On to Frozen food section, found out I was in trouble. EVERY bag of frozen veggies, fruit, taters, etc had warning labels  of may contain Wheat! I swear almost got frost bite searching for frozen fruit to care to work, along with the rice soups, all of them called for frozen veggies.  Finally found them all!

Now on to other items, nuts, corn tortillas, juices, chickpeas!

Baking supplies: This is the area I started getting upset, the store I was in has a very limited types of flour. Who would have thought cornmeal has wheat! Over half the recipes I pulled called for “cornmeal”, no place where I read did it list that cornmeal was a concern for gluten. I know the poor employees thought I had a few too many drinks. I almost unloaded the shelves to see if the different brands, if any were gluten free. Finally found a small bag of cornmeal, which is fully gluten free cornmeal.

At this point I am wondering around with tears in my eyes, texting my best friend for moral support. She is awesome.  I am so glad I have an awesome person outside the family to talk to!

After an hour and half long shopping trip, I stumble out of the grocery store.

I guess my problem is after living a Low Carb diet for years, I was excited I could try and find items to add to my diet, but in reality found out I have to remove even more.

In short: my dinner night after hour and half shopping spree:

Toasted Corn tortillas: with naked pan seared Chicken & Portabella Mushrooms, topped with Fresh baby Spinach, dried cranberries, soy nuts and GF Vinaigrette dressing.  Just hope it was Gluten Free.

The family at the same, except they had pasta instead of the Corn Tortillas, both girls tried the tortillas but they hated it.  I don’t know what we are going to do, if the kids are positive.

PS: as a side note. My 9 year old just kicked me out of the kitchen to make dessert. She keeps running in here with packages for me to read the labels.  I guess it is going to be ok.


Have you ever found yourself excited about finding out you had a disease?

Have you ever said YES! I have to make changes for the rest of my life and be happy you do?

Well I have.  The last 10 years I have bounced around and around specialists: Cardiologist, Gastroenterologist, Rheumatologist, Endocrinologist and even yes even a therapist. Everyone has a way to relieve symptoms, but no one has a reason for them happening or a way to keep them from happening again.

In the last 9 days, my internist has found the reason, booked with a new Gastroenterologist and he has confirmed.

What has been found? Celiac Disease? What the heck is Celiac Disease? Why does this make me happy?

Celiac Disease:  my body does not process a gluten, and because of this my small intestines have been damaged.

Why does this make me happy? After years of dealing with this unknown reason for how I feel, I have an answer and it is treatable.

How is it treated? Remove Gluten from my diet and life.

Are there other things to worry about? I still have to have my children tested to see if they have the positive blood test. If they do, we will remove gluten from their life also.

What changes are in store? The number one thing is to remove the obvious: Wheat, Rye, Barley and Oats. Sounds easy? You never realize how much you crave something until you can no longer have it. For me, it is rather simple. I have been on a low carbohydrate diet on and off for years, but now I can add back rice, corn and potatoes back into my diet, but my weakness. The item I always added back into my low carb as soon as I was at a point to start adding back is Oats. I love oatmeal.

Now don’t get me wrong, I am not happy I have this disease, what I am happy about it that for the first time in years, there is name and a treatment for is making me ill. My energy will come back, I can walk a mile with my children, and I can have a hug from my children without hurting!

 My only fear is that I passed on the gene and disease to my children, but I will let their doctor’s review and we tackle if there is a problem.


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